Brianne, a funeral celebrant, said, ‘Most parents don’t have to imagine their kid not living past whatever age but it’s a reality for us that we will probably lose her. We baptized her right away because we were told that we should just bring her home to d*!e.“It was like mourning – the idea of all of the life that you imagined for your child has suddenly been taken away.’
But despite the doctor’s grim prognosis, Kenadie is is thriving today in a mainstream classroom with other children her age. She is now in seventh grade and is just 3905 inches tall. But her 10 year old brother Tyran, towers over her.
The mother said, ‘She’s kind hearted, she is loving and wants to share everything with everyone. She is feisty, determined and independent – she takes no crap from anybody.’

Kenadie weighs just 23.5lbs. She wears an infant size 7 shoe and also wears clothes fit for a toddler. Kenadie takes skating classes, swimming lessons, and plays with friends after school and has a busy social life.
Brianne added, ‘It makes me so proud to see her in these activities it makes me cry. I have cried so many times when she is on the skating rink, everything she does, I cry.’
As those suffering the condition are prone to fragile and thin bones, she also faces some ser!*ous medical threats.